Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden comprise a total population of approximately 27 million. provide unique opportunities for joint health registry-based research in large populations with long complete follow-up, facilitated by shared features, such as the tax-funded public care systems, similar population-based registries, personal identity number identifier all citizens. In this review, we an introduction to key how navigate practical ethical aspects setting up studies. For each country, overview statistics expenditures, describe operational administrative organization system. registries population-based, routine, prospective data on individuals lives virtually follow-up exact censoring information. We briefly birth patient cancer prescription causes death focus period coverage, selected variables, potential limitations. Lastly, discuss some legal perspectives. is not fully exploited, mainly due difficulties in, example, cross-border sharing data. Future tasks include clear transparent pathways framework which facilitated.